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Vital Info


Patti (pattih)


November 10, 2010


Click here.


Geneva, Illinois 60134


February 26, 1959


Cancer Fighter

Cancer Info


Non-Hodgkin Lymphoma


Diffuse Large B Cell Lymphoma


August 27, 2010


Stage 1


01


Grade 1


No


Cyclophosphamide (Cytoxan), Adriamycin (Doxorubicin)


It srikes out of the blue and can hit anyone.


So far that I'm stronger than I give myself credit for.


Soup please. Oh and a hug every now and again with a sincere "you CAN do this"


Rituxin, vincristine, doxorubicin, cytoxin and prednisone. Neulasta. Wicked bad side effects for first week following treatment.


Hqeadcovers.


LaGrange Oncology. Delnor Community Hospital.


Read, read, and read. And ask as many questions as you want of your docs.


Keep busy and try not to dwell on them. Go about your life as if you haven't the time for it and you wont get consumed by it.



Stats


Posts: 59
Photos: 4
Events: 3
My Supporters: 46
I Support: 39
Comments: 266
Views: 29600
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Pattih's Cancer Blog

CT Results

I haven’t blogged in some time and I feel like this could get a little long….

You know I think that I have just wanted all of this (cancer business) to “go away”, but it seems it just isn’t. In December I had my one-year CT post chemo. I was expecting another “all clear”. It wasn’t to be this time. Something called a “ground glass nodule” was found in my right lung. My oncologist says that because of its size, it will need to be followed, meaning that in six months I have to have another CT specifically to compare density, size, etc. of this anomaly. Damn it. Possibilities range from different cancers to scar tissue from previous lung infections. And no way to tell until the follow up CT apparently.

I have been trying to have the attitude that I won’t worry until someone tells me I have to worry. Unfortunately I just seem to be made differently than that. I think about it all the time. It’s like I’m holding my breath until June. Both my oncologist and GP have said that it’s “probably” nothing – but that is what the gastroenterologist told me when they took out the small mass/polyp that turned out to be DLBC Lymphoma. So I have to have faith on the one hand that all will be ok, but on the other be realistic that it just may not be at all.

These long winter days are hard enough for me. I suppose I am one of those folks with seasonal affective disorder, because I just get depressed as heck this time of year, and sometimes for no reason other than having to walk the dog in the snow and cold. It’s unreasonable I am aware, and some days I feel positively inconsolable. It’s not enough that I spend my days largely alone, but now I am waiting on the proverbial “other shoe to drop”.

In December I suffered an injury to my right thigh too – on New Year’s Eve I was out snowmobiling in northern Wisconsin for a day with my husband and nephew and rolled that machine on a slope. I was pinned under it by the handlebar grip and couldn’t push the machine off of me with the other leg, so just laid there yelling for help and in tremendous pain until John and Mike came running from opposite directions and hauled it off of me. I thought I could have broken my leg, but it turned out to be a very deep tissue bruise. Now it’s no longer all the colors of the rainbow, but I have a grapefruit sized lump that is quite painful that I’m told could be there a year or longer. Egads.

So right now I am all kinds of physically and emotionally beat up. I haven’t blogged about it or really even talked about it much with anyone, as my usual reaction to trauma of any kind is to internalize it. But I am having a bit of a mental crisis and just am not coping well at all. I’m worried sick that the little thing in my lung is not so little after all, and that the reason I’m not healing from the deep bruise is related. That’s probably nonsense, but it’s keeping me awake at night all the same. I do know my white blood count is considered normal, but it’s at the very lowest end of normal. Hmmm.

I know there are SO many others with worries and problems SO much worse than mine. I feel guilty even that I’m complaining. It’s just been such a long time since I felt truly happy and full of vitality and hope. And this is not all related to having had cancer – it’s finances, strained marriage, being the caretaker for everyone but myself, etc. along with waiting on that other shoe. I just put my feet forward and push on each day, but lately it feels like I’m walking through thick mud and quicksand. I just want to cope better and have things go more smoothly. Augh. It doesn’t seem much to ask, you know?

Thanks for listening my friends. You all have saved me before and I guess I’m asking for help again.

With gratitude,
Patti

7 people sent you a hug.

Hi Patti,
I will be sending you prayers that all will come out well with your follow up scan in 6 months. That is good self advice to not worry until someone tells you too worry as you need to enjoy all the time you are given as best as you can. Easier said than done I am sure, but also very little choice to do anything else. I also get a bit of depression during these winter months here in Wisconsin. It sounds like snowmobiling would have been a good way of coping with it and providing enjoyment though. Sorry to hear that you got injured doing that. It’s good to see you blogging though. I’ve also felt the same way about thinking that there are others probably going through worse, but it’s also nice just to know that people are still doing well after going through all this and we all go through various things in life and as part of our new normal.

Take Care,
Jeff

Hi Patti,
Sorry to hear that you’ve been having a rough time lately, with the questionable CT and your leg injury. I think its a special level of paranoia that comes with a cancer diagnosis, the back-of-your-mind lurking thoughts that know just how bad the news can get, and how suddenly things can go horribly, horribly wrong.
Like Jeff, I’m sending prayers that this glitch in your lung is nothing to worry about, and that it will all come out well at your follow up scan. I think it is easy to get depressed (or more depressed)in gloomy winter. There is something uplifting about a sunny warm day. Its a shame you got hurt trying to make some fun out of the winter weather.
Have you tried arnica or Lasonil on your bruise remains? Deep tissue bruising can take ages to clear, and either of those products are good at breaking up old bruising – I’ve used Lasonil before when I broke my ankle, the bruising went down to the bone & was horrific but the Lasonil helped it to clear up.
I’m sending warm summer thoughts your way too – we’re in the middle of summer here in Oz, and today it is 100 degrees Farenheit, so we have the opposite problem!
Take care and look after yourself.
Hugs,
Kat

So sorry you have been feeling down, and everything that has been happening to you! I am glad to hear from you I have been wondering about you and hoping you were just to busy havinga “normal” life to be in here. I sure hope the CT is nothing will be praying hard for you!

Try not worry so much,whether it is something or nothing. By worrying we just give cancer that one up card on us saying they will win no matter what! My motto is “Don’t go there till you get there and I know I am not the one to talk right now cause I am dealing with more crap myself.( My blog on tumours). But my point being that I will not let cancer or illness consume meeach day, it has taken enough and I won’t give it anymore! I wake up each morning and think of 10 things I have to be happy about… At night I think about the day and 10 good things that happened no matter how big or small….. it helps, I should be keeping a journal and will start doing that too!or even post them on here! Who knows maybe it will help others. Talk to your GP about how you have been feeling maybe they might be able to help, if need be something to help sleep, cause if you cannot sleep it just makes it worst!

I am not trying to sound doom and gloom by any means just want you to know, that the cancer crap seems to follow us! There are however a lot of us on here lately who have been havinga good normal life and just to busy to blog! I love it when people say that!

I hate winter too Patti! We had a great winter up until 2 weeks ago 45 to 50 F on the good days then we went into a deep freeze which got as low as -45 to 50F at night! Finally we are getting out of it and having average winter weather here!

Anyhow sweety, I can’t sleep tonight so thought I would come in and post my ENT appointment , saw your post and had to respond! You are not alone , never, ever, ever and please come in here and write when you are down, you know it helps and you know we care! God bless and lots of hugs Val

Yes, there are so many others with worse situations and cancers, but, it is your situation and your cancer. I am 2 months out of treatment, and I have been having an on and off again difficult time. I had to be put on prozac for ptsd. It helps, but, I think that once you have been through what we have been through -life is just not going to be the same and there are worries. I have a colonoscopy coming up..some “inflammation” showed up on my petscan ..docs tell me not to worry, but, how can you? My mind goes right to the big C..I am a nurse and in healthcare, so, my mind goes in a million different places..not all good on prozac..It is not easy..Sometimes medication helps..destraction..I don’t know..when you find it..let me know..Cancer is a life altering experience..I hope you find peace..I hope your ct is good and this is all okay. Hope your leg gets better. Hope you have a good day!

Patti, you should never feel guilty about venting, especially here! We all do it! I hope your leg heals quickly (a year???!??) and more importantly, I hope that the nodule is NOTHING. A big fat nothing!

As for being alone, could you take a class somewhere? or volunteer?

Snowmobiling does sound like fun, though!

Hi Patti,

Blecchh to “ground glass nodules” and blecchh to having to worry about his crap for six months. The good news is, most of these don’t look to be cancerous (per my very brief, very scientific Google research) but your doc has to follow up because of your history of nhl. I will be praying for you every day. I will also be happy to smash your next CT scan if it shows anything other than good results. (I still have a lot of post-cancer angst. And smashing things would also help me burn some calories.)

I am very happy you got to kick it on a snowmobile though I am sorry that you fell off. I can’t even ride a bicycle without falling off if that makes you feel more graceful, LOL!

Getting some sunlight (or a sunlamp) every day helps a lot of folks I know beat the winter blues. Also, spending time with people helps. I agree that you should not be alone so much especially if you know that is a contributor to your depression.

I know things will work out for you. You are a wonderful lady. Please keep me (and the rest of BFAC) updated. Take care.

Thank you all for the kind words and encouragement. I think that what I have to do is take care of myself in a better way. Go to the gym, eat better, make an effort to get out of my home and DO something and see people. And get my mind off of a scan five months from now that I have no control over. Thank you guys!
Patti

Sorry to hear this Patti – Please take some comfort in the fact that lung nodule seem to be pretty common. Plus, if they are waiting 6 mos for a follow up the Dr. must not be too concerned, you and I both know that DLBC is fast fast fast and if they thought it was a recurrence they’d have you in for another scan in more like 3 mos.

Of course, your post is freaking me out because we were going through treatment at the same time. My oncologist decided to go with yearly CT scans in May. It has made me a little nervous because I was expecting every 6 months for at least the first couple of years.

No Patti, it’s never too much to ask. We hear you and I for one, understand completely. I just went through a similar scare and I think we all have that little voice back there, whispering to us about recurrence. Having to wait so long for a test has to be maddening, especially with a “what if” connected to it. I am going to cross fingers and predict scar tissue, okay. Try to find something to laugh about and have a wonderful weekend. No more stunt-driving, either, young lady!
xoxo

Because of You

I cannot say how grateful I am this evening for the prayers and good wishes of so many of you. I believe it was through your intercession that Dad had good results today.

The melanoma was found to be in the first mm of skin, and no deeper. No lymph involvement. The dermatologist was able to excise the entire mass with about two cm margins. He assured Dad that “your cancer is gone – it’s sitting in that glass over there.” He will have to follow up with an oncologist because it was melanoma, but having found that it was just beginning stages was very good news, and for it to have not gone deeper than 1mm was excellent news. Dad, along with our entire family is relieved beyond measure. Dad has been vigilant with cancer care follow up though through the years, and he’s been through A LOT. He had two large orange to grapefruit size masses taken out of his colon over 15 years ago and has regularly gone through testing. He sees his dermatologist every few months, and the one he has is excellent. In the three surgeries he has had on his face/nose just this year, there is absolutely no scarring, and his nose was literally flayed open to remove the cancers. He has gone through chemical chemo (like a peel) on facial tissue too. I was just completely worried that this one would be The Bad One. I am so happy it wasn’t. We will still sweat out the oncologist visit and probably CT and PET scans, but the probably outcome looks promising. In two weeks, old Ger will be out on that golf course again!

I am sure that prayers were answered today. Positive of it. All I can say is an extremely heartfelt “thank you”. The support received through Blogforacure is such a special gift, one I could never begin to repay. It’s because of all of you that families such as mine get though hard days like today has been.

You guys are awesome, and I love each and every one of you. Hugs and prayers to all.
Patti

4 people like this.
Fred, Sarah sent you a hug.

Yippie! And another cancer bites the dust! I am so happy and relieved for you and your Dad, Patti! Take care.

That is fantastic news!
Hugs,
Kat

Patti, I had a strong feeling that you would get this news. I think I heard that sigh of relief all the way over here in Md.
What a wonderful way to spend the holidays :)
xoxo







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